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12-Month Lobbying Summary - Organization

Cystic Fibrosis Canada / Kelly Grover, President and CEO

Registration Summary

Currently active - Reactivated: 2023-12-12

Who is lobbying?

Cystic Fibrosis Canada (Address & business activities)

Kelly Grover, President and CEO

Government Funding

Did Cystic Fibrosis Canada request or receive government funding within the last 12 months? Yes

Coalition Members Information

Cystic Fibrosis Canada is not a coalition member.

Direct Interests of the Lobbying Activity

Affiliates

Cystic Fibrosis Canada does not have any affiliates that could have a direct interest in the outcome of the lobbying activities

Other Affiliates

The activities of Cystic Fibrosis Canada are not controlled or directed by another person or organization with a direct interest in the outcome of this undertaking

Contributors with a Direct Interest in the Outcome

No person or organization contributed over $1000CDN, within the preceding 12 months, toward the lobbying activity on behalf of Cystic Fibrosis Canada:

What is being lobbied?

Subject Matter of the Lobbying Activities

Details Regarding the Identified Subject Matter

Details Regarding the Identified Subject Matter

Will any of the lobbyists listed within this registration arrange a meeting between a public office holder and any other individual for the purpose of attempting to influence any of the matters listed below:

Yes

Specific Topics of Lobbying Communications	Intended Outcomes	Associated Subject Matters
We are calling on the BC government to ensure that CF modulator and symptom management drugs are available and affordable for all who need them.	Development, establishment, amendment or termination of any program, policy, directive or guideline of the government of British Columbia or a Provincial entity	Health

Gifts or benefits provided by the organization

Gifts or Benefits Provided to Public Officer Holders
Name	Gift or Benefit Description	Circumstance	Date Promised	Value Promised	Date Given	Value Given
No Records

Who is being lobbied?

Ministries/Provincial Entities

Provincial Health Services Authority

Who are the lobbyists?

In-house Lobbyists

Lobbyist

Contributions

Paul Eckford
Subscribes to a Code of Conduct: No
Former Public Office Holder in BC: No

Lobbied or plans to lobby a member of the Legislative Assembly, including a Minister or Premier, on behalf of this organization, on or after 2020-09-21: Yes

Political: No
Sponsorship: No
Recall: No

Kelly Grover
Subscribes to a Code of Conduct: No
Former Public Office Holder in BC: No

Lobbied or plans to lobby a member of the Legislative Assembly, including a Minister or Premier, on behalf of this organization, on or after 2020-09-21: Yes

Political: No
Sponsorship: No
Recall: No

Jana Kocourek
Subscribes to a Code of Conduct: No
Former Public Office Holder in BC: No

Lobbied or plans to lobby a member of the Legislative Assembly, including a Minister or Premier, on behalf of this organization, on or after 2020-09-21: Yes

Political: No
Sponsorship: No
Recall: No

Kim Steele
Subscribes to a Code of Conduct: No
Former Public Office Holder in BC: No

Lobbied or plans to lobby a member of the Legislative Assembly, including a Minister or Premier, on behalf of this organization, on or after 2020-09-21: Yes

Political: No
Sponsorship: No
Recall: No

Christy Thomson
Subscribes to a Code of Conduct: No
Former Public Office Holder in BC: No

Lobbied or plans to lobby a member of the Legislative Assembly, including a Minister or Premier, on behalf of this organization, on or after 2020-09-21: Yes

Political: No
Sponsorship: No
Recall: No

Registration number: 1476-1197
View all registrations versions

Lobbying Activity Reports

What lobbying activities have taken place in the last 12 months?

What lobbying activities have taken place in the last 12 months?
Date	Arranging a Meeting	Lobbyists	Senior Public Office Holder, Position Title \| Ministry/Provincial Entity	Subject Matters
2023-12-12	No	Paul Eckford	Mitch Moneo, ADM, Ministry of Health, PLBSD - Pharmaceutical, Laboratory & Blood Services Division \| Provincial Health Services Authority	View
2023-11-16	No	Kim Steele	Tijana Fazlagic, Executive Director \| PharmaCare Benefits Branch, Health	View

View all Lobbying Activity Reports

Cystic Fibrosis Canada - Address & business activities

Address:

2323 Yonge St.800
8th Floor
Toronto, ON M4P 2C9
Canada

Telephone number: 647-268-0237

Fax number: 416-485-5707

Contact information in previous versions
- 2323 Yonge Street
  8th Floor
  Toronto, ON M4P 2C9
  Canada
  
  Telephone number: 647-268-0237
  
  Fax number: 416-485-5707
- 2323 Yonge Street
  8th Floor
  Toronto, ON M4P 2C9
  Canada
  
  Telephone number: 416-485-9149
  
  Fax number: 416-485-5707
- 2323 Yonge Street
  8th Floor
  Toronto, BC M4P 2C9
  Canada
  
  Telephone number: 416-485-9149
  
  Fax number: 416-485-5707
- 2323 Yonge Street
  
  Toronto, ON M4P 2C9
  Canada
  
  Telephone number: 416-485-9149

Description of Activities:
Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world's top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada.

Descriptions of the organization's activity in previous versions:
- Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world's top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada.

Received Government Funding

The Received Government Funding table below is not intended to be additive. Adding all of the entries together does not necessarily provide an accurate sum of all government funding received. There may be redundancy (reporting of the same funding more than once) caused by overlap in the "Date/Period Received" between 2 or more entries.

Source of Government Funding	Funding Received	Date/Period Received
ESDC	$21,350.00	2023-01-01 to 2024-12-31

View all received government funding history

Date Modified:: 2024-01-29