Review Registration - Organization

This version of the registration was submitted prior to the Lobbying Transparency Act coming into force on May 4, 2020. Due to different information requirements at that time, the registration is presented in the following format.

Registration ID: 1116004
Submitted by lobbyist on: March 3, 2020 01:04:06 PM
Accepted by Registrar on: March 4, 2020 04:03:38 PM

Designated Filer Information

Grover, Kelly  
Cystic Fibrosis Canada Cystic Fibrosis Canada, 2323 Y  
Toronto, ON, M4P 2C9
416-485-9149
Canada  

Organization Information

Cystic Fibrosis Canada  
Cystic Fibrosis Canada is a national charitable not-for-profit corporation established in 1960, and is one of the world's top three charitable organizations committed to finding a cure for cystic fibrosis (CF). As an internationally recognized leader in funding innovation and clinical care, we invest more in life-saving CF research and care than any other non-governmental agency in Canada.
2323 Yonge Street 8th Floor  
Toronto, ON, M4P 2C9
647-268-0237
Canada  

Relevant Affiliates

Type:

Business Name Mailing Address Contact Information
Best Medicines Coalition 278 Markland Drive 1187 Chapman Crescent, 1187 Ch
Toronto, ON
M9C 1R7
Canada
Phone: 905-325-8717
Canadian Coalition for Genetic Fairness 151 Frederick St, Suite 400
Kitchener, ON
N2H 2M2
Canada
Phone: 800-998-7398
Canadian Organization for Rare Disorders (CORD) 151 Bloor Street West, Suite 6
Toronto , ON
M5S 1S4
Canada
Phone: 416-969-7464
Episodic Disabilities Network 1240 Bay Street, Suite 600
Toronto, ON
M5R 2A7
Canada
Phone: 416-513-0440
Health Charities Coalition of Canada Annex D, 41 Empress Ave
Ottawa, ON
K1R 7E9
Canada
Phone: 613-440-4411


Government or Government Agency Funding


Name of Funding provider Amount in CAD$
British Columbia Gaming $50,453.00
British Columbia Ministry of Health $105,980.00

Other Controlling or Directing Interests

The organization has no other controlling or directing interests.

Active Registration Period

March 3, 2020  
September 3, 2020  

Organization's In-House Lobbyists

 



Name: Grover, Kelly
 
March 3, 2020  

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

To improve access to cystic fibrosis medicines and quality CF care.

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Darcy, Judy Minister of Mental Health and Addictions March 3, 2020
Minister Dix, Adrian Minister of Health March 3, 2020
Public Agency Provincial Health Services Authority March 3, 2020

Name: Ketelaars, Shannon
 
March 3, 2020  

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

To improve access to cystic fibrosis medicines and quality CF care.

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Darcy, Judy Minister of Mental Health and Addictions March 3, 2020
Minister Dix, Adrian Minister of Health March 3, 2020
Public Agency Provincial Health Services Authority March 3, 2020

Name: Mariglia, Eric
 
March 3, 2020  

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

To improve access to cystic fibrosis medicines and quality CF care.

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Darcy, Judy Minister of Mental Health and Addictions March 3, 2020
Minister Dix, Adrian Minister of Health March 3, 2020
Public Agency Provincial Health Services Authority March 3, 2020

Name: Steele, Kim
 
March 3, 2020  

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

To improve access to cystic fibrosis medicines and quality CF care.

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Darcy, Judy Minister of Mental Health and Addictions March 3, 2020
Minister Dix, Adrian Minister of Health March 3, 2020
Public Agency Provincial Health Services Authority March 3, 2020

Name: Wallenburg, John
 
March 3, 2020  

BC Public Office Background

This individual has not held any public office positions in BC.

Lobbying Activities

Health

Development, establishment, amendment or termination of any program, policy or decision

To improve access to cystic fibrosis medicines and quality CF care.

Target Contacts

Target Type Name Title or Constituency Date Added
Minister Darcy, Judy Minister of Mental Health and Addictions March 3, 2020
Minister Dix, Adrian Minister of Health March 3, 2020
Public Agency Provincial Health Services Authority March 3, 2020