Registration - Consultant Lobbyist

The Canadian Forum for Rare Disease Innovators (RAREi) / Steve Vander Wal, Consultant Lobbyist

Registration Information

Client name: The Canadian Forum for Rare Disease Innovators (RAREi)
Lobbyist name: Steve Vander Wal, Consultant Lobbyist
Initial registration start date: 2026-03-06
Registration status: Active
Projected end date: No date provided
Registration number: 2215-6474

Associated Lobbying Activity Reports

Total number of Lobbying Activity Reports: 1

Lobbying Activity Reports - last 6 months: 1

Version 1 of 1 (2026-03-06 to present)

Lobbying Information

Subject Matter of the Lobbying Activities

Details Regarding the Identified Subject Matter

Will the consultant lobbyist be arranging meetings between a public office holder and the client for the purpose of attempting to influence any of the matters listed:

Yes

Specific Topics of Lobbying Communications	Intended Outcomes	Associated Subject Matters
Provincial expensive drugs for rare disease program review and other rare disease-related policy issues	Development, establishment, amendment or termination of any program, policy, directive or guideline of the government of British Columbia or a Provincial entity	Economic Development and Trade, Emergency Preparedness, Finances and Budgets, Health, Hospitals, Industry, Intellectual Property, International Trade, Mental Health and Addictions, Science and Technology

BC Ministries/Provincial Entities

Health
Office of the Premier

Contingency Information

Payment to the consultant lobbyist by the client, in whole or in part, is not contingent on the outcome of this lobbying activity.
Payment to the consultant lobbyist by the client, in whole or in part, is not contingent on the success in arranging a meeting with public office holders on behalf of the client.

Client Details

Client Contact Information

The Canadian Forum for Rare Disease Innovators (RAREi)

Address:
PO Box 81062
Ottawa, ON K1P 1B1
Canada

Website: rarei.ca

Description of Business Activities

RAREi is an informal coalition of 17 Canadian biopharmaceutical companies committed to improving the lives of rare disease patients by researching, developing, and commercializing rare disease treatments. It is committed to monitoring, responding to and shaping policy issues in the Canadian rare disease environment

Contributors to the Lobbying Activity

No person or organization contributed over $1000CDN, within the preceding 12 months, toward the lobbying activity on behalf of the organization that has a direct interest in the outcome of the lobbying activity.

Government Funding in the Last 12 Months

No government funding was received within the preceding 12 months based on the submission date requirements for this registration.

Other Entities (working together for the purposes of lobbying) Information

Alexion Pharma Canada Corp.
- 1004 Middlegate Road Suite 5000
  Mississauga, ON L4Y 1M4
  Canada
Amgen Canada Inc
- 6775 Financial Drive Suite 300
  Mississauga, ON L5N 0A4
  Canada
Amicus Therapeutics Canada Inc.
- 6500 Trans-Canada Road, 4th Floor
  Pointe Claire, QC H9R 0A5
  Canada
Argenyx Canada
- 9131 Keele Street, Suite A4
  Vaughan, ON L4K 0G7
  Canada
Biogen Canada
- 3300 Bloor St West, Suite 1200
  Toronto, ON M8X 2X2
  Canada
Biomarin Pharmaceuticals Inc. (c/o Mark Bennett, Cassels Brock)
- 40 KING STREET,
  2100 SCOTIA PLAZA
  Toronto, ON M5H 3C2
  Canada
Ipsen Pharmaceuticals Canada Inc.
- 5060 Spectrum Way, 5th Floor
  Mississauga, ON L4W 5N5
  Canada
Johnson & Johnson Innovative Medicine
- 19 Green Belt Dr.
  Toronto, ON M3C 1L9
  Canada
Medison Pharma Canada Inc.
- 154 University Avenue, Suite 400
  Toronto, ON M5H 3Y9
  Canada
PTC Therapeutics Canada ULC
- 1100 Burloak Drive, Suite 300
  Burlington, ON L7L 6B2
  Canada
Recordati Rare Disease Canada Inc.
- 3080 Yonge Street Suite 6060
  Toronto, ON M4N 3N1
  Canada
Sanofi Canada Inc.
- 1755 Steeles Ave West
  Toronto, ON M2R 3T4
  Canada
Sobi Canada Inc.
- 1155 North Service Road West
  Unit #11
  Oakville, ON L6M 3E3
  Canada
Tanabe Pharma Canada
- 100 King St West, Suite 5600
  Toronto, ON M5X 1C9
  Canada
UCB Canada Inc.
- 2201 Bristol Circle
  Oakville, ON L6H 0J8
  Canada
Ultragenyx Canada Inc.
- 550 Burrard Street, Suite 2900
  Vancouver, BC V6C 0A3
  Canada
Vertex Pharmaceuticals (Canada) Inc.
- 20 Bay Street Suite 1520
  Toronto, ON M5J 2N8
  Canada

Affiliates with a Direct Interest in the Outcome

The Canadian Forum for Rare Disease Innovators (RAREi) does not have any affiliates that could have a direct interest in the outcome of the lobbying activities

Other Persons or Organizations with Direct Interests

The activities of The Canadian Forum for Rare Disease Innovators (RAREi) are not controlled or directed by another person or organization with a direct interest in the outcome of this undertaking.

Lobbyist Details

Steve Vander Wal | Former Public Office Holder Positions in BC

Business address:
57 - 100 Klahanie Drive
Port Moody, BC V3H 5K3
Canada

Fax number: 555-555-5555

Relevant Codes of Conduct

The consultant lobbyist does not have in place an undertaking to comply with any relevant codes of conduct.

Political, Sponsorship and Recall Contributions

Consultant has lobbied, or plans to lobby a member of the Legislative Assembly, including a Minister or Premier, on behalf of this client, on or after 2024-09-21:	No Contributions information is not required

Details of the political, sponsorship or recall contributions can be found at the Financial Reports and Political Contributions System (FRPC) website.

Gifts or Benefits Provided to Public Officer Holders

No gifts or benefits were provided to public office holders

Individuals Hired or Subcontracted to Lobbying on behalf of the Client

No records

Consultant Lobbyist Firm and Address

Firm: Rocky Point Public Affairs

Address:
Suite 301 – 220 Brew Street
Port Moody, BC V3H 0H6
Canada

The Canadian Forum for Rare Disease Innovators (RAREi)

Name change history

Name change history
Name	From	To
The Canadian Forum for Rare Disease Innovators (RAREi)	2026-03-06	current

The Canadian Forum for Rare Disease Innovators (RAREi)

Senior Officer History
Senior Officer Name	From (YYYY-MM-DD)	To (YYYY-MM-DD)

Steve Vander Wal, Rocky Point Public Affairs (Consultant Lobbyist)

Learn more...

Designated Filers are required to submit a Lobbying Activity Report for each lobbying activity with a senior public officer holder. The name of the most senior paid officer (i.e. the designated filer) will appear on all in-house Lobbying Activity Reports, whether or not he/she participated in the activity.

Note: Lobbying Activity Reports are due on the 15^th day of each month for lobbying activities that took place in the previous month.

Results below are sorted by posted date, beginning with the most recent.

Results 1-1 of 1

The Canadian Forum for Rare Disease Innovators (RAREi)
Consultant Lobbyist: Steve Vander Wal

Senior Public Office Holders who were lobbied in this activity:
- Ian Rongve, ADM | Health
Lobbying Activity date: 2026-03-06
Posted date: 2026-03-16
Lobbying Activity number: 6474-49960 View Lobbying Activity Report

Steve Vander Wal, Rocky Point Public Affairs (Consultant Lobbyist)

Learn more...

Results below are sorted by posted date, beginning with the most recent.

Results 1-1 of 1

The Canadian Forum for Rare Disease Innovators (RAREi)
Consultant Lobbyist: Steve Vander Wal

Senior Public Office Holders who were lobbied in this activity:
- Ian Rongve, ADM | Health
Lobbying Activity date: 2026-03-06
Posted date: 2026-03-16
Lobbying Activity number: 6474-49960 View Lobbying Activity Report

List of Former Public Offices Held in BC

List of Former Public Offices Held in BC
Position	Period Held
Ministerial Assistant to the Minister of Health Services Health Services	December 2004 to February 2006
Ministerial Assistant to the Minister of Advanced Education and Deputy Premier Advanced Education	October 2003 to December 2004
Executive Assistant to the Minister of Health Services Health Services	September 2002 to October 2003

Date Modified:: 2026-01-19

Menus

www.lobbyistsregistrar.bc.ca

Registration - Consultant Lobbyist

The Canadian Forum for Rare Disease Innovators (RAREi) / Steve Vander Wal, Consultant Lobbyist

Registration Information

Associated Lobbying Activity Reports

Version 1 of 1 (2026-03-06 to present)

Version 1 of 1 (2026-03-06 to present)

Details Regarding the Identified Subject Matter

BC Ministries/Provincial Entities

Contingency Information

Client Contact Information

Description of Business Activities

Contributors to the Lobbying Activity

Government Funding in the Last 12 Months

Other Entities (working together for the purposes of lobbying) Information

Affiliates with a Direct Interest in the Outcome

Other Persons or Organizations with Direct Interests

Relevant Codes of Conduct

Political, Sponsorship and Recall Contributions

Gifts or Benefits Provided to Public Officer Holders

Individuals Hired or Subcontracted to Lobbying on behalf of the Client

Consultant Lobbyist Firm and Address