Registration - Organization

Canadian Diabetes Association operating as Diabetes Canada / Laura Syron, President

Registration Information

Organization name: Canadian Diabetes Association operating as Diabetes Canada
Previous Organization names
Senior Officer Name: Laura Syron, President
Senior Officer Change History
Initial registration start date: 2012-07-31
Registration status: Active
Projected end date: No date provided
Registration number: 6886-728

Associated Lobbying Activity Reports

Total number of Lobbying Activity Reports: 64

Lobbying Activity Reports - last 6 months: 11

Version 34 of 56 (2022-06-30 to 2022-06-30)

Registration versions:

Version 34 of 56 (2022-06-30 to 2022-06-30)

Lobbying Information

Subject Matter of the Lobbying Activities

Details Regarding the Identified Subject Matter

Will any of the lobbyists listed within this registration arrange a meeting between a public office holder and any other individual for the purpose of attempting to influence any of the matters listed below:

Specific Topics of Lobbying Communications	Intended Outcomes	Associated Subject Matters
Diabetes Canada asks the government of British Columbia, the Minister of Health in particular, the official opposition and individual MLAs to support the federal government's process to develop a nationwide diabetes framework, according to Bill C-237. Diabetes Canada lobbyists, together with patient advocates, speak directly to elected officials about Diabetes 360 in individual meetings, at community events, in caucus meetings, and at MLA functions such as receptions. We also send correspondence, including letters and emails that include information about the benefit to the province of a nation-wide diabetes strategy. We also connect with and deliver our call to action through social media channels. Diabetes 360 is a nation-wide comprehensive strategy to achieve improved diabetes prevention, screening, treatment, and health outcomes. When a nation-wide diabetes strategy is adopted, provinces and territories will benefit from the federal government's financial investment and leadership to develop a coordinated approach to reversing the diabetes epidemic and reducing the tremendous personal and economic burdens of the disease.	Development or enactment of any regulation, including the enactment of a regulation for the purposes of amending or repealing a regulation Development, establishment, amendment or termination of any program, policy, directive or guideline of the government of British Columbia or a Provincial entity	Health
Diabetes Canada recommends that the government of British Columbia develop a provincial diabetes strategy using our Diabetes 360 strategy framework. Diabetes Canada speaks to executive members of the Ministry of Health as well as the Provincial Health Services Authority (PHSA) about developing a provincial diabetes strategy to address the accelerating prevalence of type 2 diabetes in BC, as well as the increasing public cost to treat diabetes and its complications, including kidney failure, heart attacks, strokes, blindness and amputations. Diabetes Canada presents its comprehensive strategy framework, Diabetes 360, as a template to build a provincial strategy. PHSA committed in 2019 to developing a strategy by spring 2020, but it has yet to be presented or launched.	Development or enactment of any regulation, including the enactment of a regulation for the purposes of amending or repealing a regulation Development, establishment, amendment or termination of any program, policy, directive or guideline of the government of British Columbia or a Provincial entity	Health
Diabetes Canada works to enhance access to diabetes medications, medical supplies and medical devices on behalf of the diabetes community in British Columbia. Together with patient advocates, Diabetes Canada lobbyists meet with elected officials in individual meetings, caucus meetings and in all party receptions to recommend better access to diabetes medications as recommended in Diabetes Canada's Clinical Practice Guidelines (CPGs). Diabetes Canada also sends emails to elected officials and connects via social media platforms. We advocate for insulins and newer oral medications to treat patients with type 2 diabetes to be listed on the provincial drug formulary and therefore be available through BC PharmaCare programs. We also lobby that the cost of these medications not be a barrier or a burden to their access. Diabetes Canada does not lobby for access to a particular drug, but sometimes for a class of drugs, but most specifically we lobby for access to the medications recommended in our Clinical Practice Guidelines (CPGs) that patients require to best manage their diabetes. Many of the newer diabetes drugs with proven efficacy to improve health outcomes (i.e. better managed blood sugar levels to reduce the risk of long-term complications) are not available to British Columbians unless they can afford to pay out-of-pocket for them or have private employer insurance. We lobby for public access to these important medications so that all British Columbians have the opportunity to treat their diabetes and reduce the risk of complications. Diabetes Canada also lobbies for patient choice related to the BC Biosimilar Initiative, rather than the current forced switch from an originator biologic drug to its less costly biosimilar. We believe that patients, along with their healthcare team, should be agreeable to changes in their diabetes therapy. Diabetes Canada also lobbies for improved access to medical devices that are proven to provide benefit to people with diabetes. Although British Columbia has an insulin pump program, it limits the choice of British Columbians with type 1 diabetes. We lobby for enhanced choice to devices in this program. We also lobby for public coverage of advanced glucose monitoring devices, including continuous glucose monitors and flash glucose monitors, that are currently covered by many private and employer health plans. The government of BC does not provide public coverage for these devices which places many British Columbians in the position of paying out-of-pocket for going without. Diabetes Canada has a tentative plan to launch an educational and advocacy campaign in fall 2020 related to the proven benefit of these devices for people with type 1 and type 2 diabetes. We also advocate for public coverage of off-loading (specialized devices that off-load a wound so it can heal) devices for British Columbians with diabetes and a diabetic foot ulcer, a complication of diabetes. Access to these devices can reduce the number of lower-limb amputations conducted in British Columbia and significantly reduce the tremendous personal and economic burden that an amputation causes.	Development of any legislative proposal by the government of British Columbia, a Provincial entity or a member of the Legislative Assembly Introduction, amendment, passage or defeat of any Bill or resolution in or before the Legislative Assembly Development or enactment of any regulation, including the enactment of a regulation for the purposes of amending or repealing a regulation Development, establishment, amendment or termination of any program, policy, directive or guideline of the government of British Columbia or a Provincial entity	Health
Seeking changes to the provincial reporting requirements of inhouse lobbyists to the BC Lobbyist Registry.	Development, establishment, amendment or termination of any program, policy, directive or guideline of the government of British Columbia or a Provincial entity	Justice and Law Enforcement

BC Ministries/Provincial Entities

Attorney General and Minister responsible for Housing
Health
Member(s) of the BC Legislative Assembly
Parliamentary Secretary for Community Development and Non-Profits
Provincial Health Services Authority

Organization Details

Senior Officer Name and Position during the Period of this Registration

Laura Syron, President

Organization Contact Information

Canadian Diabetes Association operating as Diabetes Canada

Address:
Suite 1300, 522 University Avenue
Toronto, ON M5G 2R5
Canada

Telephone number: 416-408-7021

Description of Activities

Diabetes Canada is a national health charity representing Canadians at risk of or living with diabetes. Diabetes Canada lobbies for public policy that best serves our patient group and helps to achieve our mission: To lead the fight against diabetes by helping those affected by diabetes to live healthy lives, prevent the onset and consequences of diabetes, and discover a cure.

Gifts or benefits provided by the organization

Gifts or Benefits Provided to Public Officer Holders
Name	Gift or Benefit Description	Circumstance	Date Promised	Value Promised	Date Given	Value Given
No Records

Contributors to the Lobbying Activity

No person or organization contributed over $1000CDN, within the preceding 12 months, toward the lobbying activity on behalf of the organization that has a direct interest in the outcome of the lobbying activity.

Government Funding in the Last 12 Months

Requested Government Funding

Funding Request made to:	Funding Requested	Date Requested
Canada Summer Jobs 2022	$31,327.00	2022-01-25
Canada Summer Jobs 2022	$33,880.00	2022-01-25
Government of Canada CEWS	$25,530.28	2021-08-02
Government of Canada CEWS	$37,853.62	2021-09-06
Government of Canada CEWS	$257,792.48	2021-07-01
Government of Canada Canadian Heritage’s Museum Assistance Program - Reopening Fund for Heritage Organizations	$15,000.00	2021-09-01
Government of Newfoundland and Labrador	$10,000.00	2022-05-09
Government of PEI	$10,000.00	2022-05-09
Ontario Small Business Relief	$10,000.00	2022-02-20
Public Health Agency of Canada	$40,000.00	2022-01-12

View all requested government funding history

Received Government Funding

The Received Government Funding table below is not intended to be additive. Adding all of the entries together does not necessarily provide an accurate sum of all government funding received. There may be redundancy (reporting of the same funding more than once) caused by overlap in the "Date/Period Received" between 2 or more entries.

Source of Government Funding	Funding Received	Date/Period Received
Canada Summer Jobs ( for BC)	$9,880.00	2021-06-21 to 2022-02-26
Canada Summer Jobs ( for ON)	$11,970.00	2021-06-21 to 2022-02-26
Canada Summer Jobs (Banting H.)	$4,509.00	2021-06-21 to 2022-02-26
Canada Summer Jobs (Ottawa)	$3,990.00	2021-06-21 to 2022-02-26
Canada Summer Jobs (for MB)	$3,875.00	2021-06-21 to 2022-02-26
Canada Summer Jobs 2022	$33,880.00	2022-04-22
Government of Canada CEWS	$25,530.28	2021-09-01
Government of Canada CEWS	$37,853.62	2021-10-04
Government of Canada CEWS	$225,000.00	2021-07-01
Government of Canada CEWS	$257,792.48	2021-08-02
Government of Canada Canadian Heritage’s Museum Assistance Program - Reopening Fund for Heritage Organizations	$16,938.00	2021-12-10
Government of Newfoundland and Labrador	$10,925.00	2022-05-25
Government of PEI	$10,000.00	2022-05-25
Government of PEI	$10,925.00	2022-05-25
Manitoba Health (for camps)	$10,100.00	2021-06-01 to 2022-05-31
Ministry of Health and Long-Term Care (Ontario) Monitors program	$89,542.00	2021-09-01
Ministry of Health and Long-term Care (Ontario) Monitors	$89,542.00	2021-10-04
Ministry of Health and Long-term Care (Ontario) Monitors	$89,542.00	2021-11-01 to 2021-11-30
Ministry of Health and Long-term Care (Ontario) Monitors	$89,542.00	2022-01-03
ON Ministry of Health and Long-Term Care - Monitors program	$447,710.00	2022-01-28 to 2022-06-30
ON Ministry of Health and Long-Term Care - Monitors program	$537,252.00	2022-01-28 to 2022-07-29
ON Ministry of Health and Long-Term Care - Monitors program	$626,794.00	2022-01-28 to 2022-08-29
ON Ministry of Health and Long-Term Care - Monitors program	$716,336.00	2022-01-28 to 2022-09-30
Ontario Health and Long-Term Care - Monitors program	$89,342.00	2021-07-01
Ontario Health and Long-Term Care - Monitors program	$135,342.00	2021-08-02
Ontario Health and Long-term Care - Monitors program	$89,542.00	2022-02-04
Public Health Agency of Canada	$40,000.00	2022-01-28

View all received government funding history

Coalition Members Information

Canadian Diabetes Association operating as Diabetes Canada is not a coalition member.

Affiliates with a Direct Interest in the Outcome

Canadian Diabetes Association operating as Diabetes Canada does not have any affiliates that could have a direct interest in the outcome of the lobbying activities

Other Persons or Organizations with Direct Interests

The activities of Canadian Diabetes Association operating as Diabetes Canada are not controlled or directed by another person or organization with a direct interest in the outcome of this undertaking.

Lobbyists Details

Lobbyists Employed by this Organization

Lobbyist

Contributions

Ashley Bergwerff
Subscribes to a Code of Conduct: No
Former Public Office Holder in BC: No